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| Research Opportunity!To Hold or Not To Hold - Tuesday, December 13, 2011Creating Guidelines for Management of Unexplained Child Death-
Bereaved parents, grandparents, step-parents and guardians of sudden and unexpected infant and childhood deaths are invited to participate in this online survey that takes about 20 minutes. Share your experience and provide your comments to help create the first national guidelines in this area.
Thank you in advance!
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| Alex's Run For A Reason Raises 25K for The SUDC Program! - Friday, October 28, 2011Alex’s Run for a Reason raises $25K for SUDC Program
Nearly 400 people came to Newbridge Road Park in Bellmore on Oct. 23 to take part in the fifth annual Alex’s Run for a Reason Family Run/Walk.
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| Grand Ledge parents to honor daughter who died a mysterious death during a nap - Friday, August 26, 2011Written by Barb Modrack. Lansing State Journal
GRAND LEDGE - When Grand Ledge toddler Ariana Lusis died suddenly during a nap on Nov. 30, 2010, her parents were left with shock, grief and unanswered questions.
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| Marshfield parents honor late daughter by starting foundation. - Monday, August 01, 2011
By Patrick Ronan
MARSHFIELD —
March 1, 2010, began like any other day for Scott and Danielle Hitchcock. The Marshfield couple put their 2-year-old daughter, Emerson Lily Hitchcock, in her crib for an afternoon nap. Two hours later, Scott and Danielle, who at the time was 12 weeks pregnant with their fourth daughter, Avery, discovered that Emerson was unresponsive and not breathing.
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| 'I felt numb – we'd lost our little boy' - Monday, August 01, 2011As told to Dina Behrman
The Guardian
In the morning, Gregor was a normal, healthy two-year-old. By the afternoon, he was dead. His mother, Linda Sterry, talks about the sudden loss of a child – and the added trauma of having to deal with police questioning. read more ... |
| Run Honors East Bay Toddler... - Tuesday, July 05, 2011By Marika Krause
An East Bay toddler passed away in her sleep and 11 years later doctors still are no closer to finding the cause. She was diagnosed with Sudden Unexplained Death in Childhood, a rare disorder similar to SIDS. NBC Bay Area's Vicky Nguyen sits down with her mother who's also started an annual race in Orinda to raise awareness and funding.
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| Cooper's Lasting Legacy - Wednesday, June 15, 2011By Lucy Nash
Many people are familiar with the term SIDS or Sudden Infant Death Syndrome.
You might have been touched by it personally, know someone who has or even just donated a couple of dollars to SIDS and Kids for one of those funny red noses.
But have you heard of SUDC?
Swan Reach couple, Robert and Kylie Trewin knew nothing of the acronym until the sudden death of their 16 month old son Cooper.
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| Event To Build Awareness for SUDC - Monday, June 06, 2011By Sarah Lindenfeld Hall
That Friday in September 2009 started out as usual for the Whitenack family in north Raleigh.
Mom Sarah Whitenack was looking forward to one of those small milestones for her younger daughter. Clare, the happy, fearless 19-month-old, had her final tumbling class for the session. Whitenack made sure she took plenty of pictures.
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| Lacing Up to Preserve Their Daughter's Legacy - Friday, May 27, 2011 |
| Event Funds SUDC Research-Tommy's Run For A Reason, Sterling, VA - Thursday, May 05, 2011
Five hundred people are expected to gather at Algonkian Park on Saturday morning to run or walk at the 3rd Annual Tommy’s Run for a Reason. After the race, the park will be alive with families enjoying festivities such as pony rides, face painting, games, eating a catered BBQ lunch by Carolina Brothers and even to get a peak at the Sterling Fire Department’s fire truck.
The event celebrates the life of and commemorates the loss of a healthy, thriving 2-year-old boy, Tommy Marshall, who unexpectedly passed away on May 11, 2008.
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| Cake Competition Means More to A SUDC Mom... - Tuesday, April 05, 2011Sarah Hardin: Cake designer and decorator. By Janet Sudnik/Photo by Robert Sutton/Published by Tuscaloosanews.com
The fringed tips of Sarah Hardin's piecy blond hair could have been iced with the same hotpink frosting that accents the three-tiered cake she's just finished decorating. The lime-green, polka-dotted,pink-bowed confection is a sugar and flour expression of Hardin's personality — bright, funky and fun. She bakes and decorates fanciful cakes and cupcakes at It Takes The Cake in Northport, and her talents have just landed her a spot on a Food Network Challenge competition.
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| Backing a Charity Benefits Others—and Yourself, by Kristy Kennedy - Monday, February 14, 2011
Wishing for spring, I pulled out some of my floral candles this week and came across a special one with a sweet pea scent.
It reminds me of dear friends, Rob and Diane Burda, who gave us one as a gift. It was a thank-you for working on a charity that we all care deeply about not only because it is a worthy cause but also because it honors their son, Joshua.
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| Pinning Down A Cure to Spare Others - Tuesday, January 11, 2011The unexpected death of a Baltimore family’s 2-½-year-old son inspired them to raise money for and increase awareness of the Sudden Unexplained Death in Childhood Program. By Maya T. Prabhu
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| TN Lawsuit Ends with Groundbreaking Ruling - Thursday, November 11, 2010A groundbreaking ruling in Tennessee last week is shedding a spotlight on the treatment of families and the death investigation process when a child dies unexpectedly.
The Sinclair family's youngest child, Tyler, died without explanation in June of 2008. The article featured below shares the story of why the Sinclair's pursued a lawsuit against Forensic Medical Management Services, PLC. They now are moving forward to advocate for a new law in Tennessee--Tyler's Law--to help families going forward.
Balancing the needs of an investigation and the sensitive care of families is possible. Last year I co-authored an article on this topic with Dr. Andrew Baker which was published in the journal Forensic Science, Medicine and Pathology titled, " To Hold Or Not To Hold". You can also obtain the published article by visiting SpringerLink.
We must continue our advocacy efforts through The SUDC Program; and we will. The tragedy of losing a child is horrific enough without any additional layers. I am confident that we can improve the system by working with the professionals involved.
Thank you to our advisory board members who continue to be a vital source of expertise and perspective that guide the program to meet our goals and help our families. I commend the Sinclair family for their courage in the wake of life's greatest tragedy.
In peace,
Laura Crandall, Program Director
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| Group to lobby for child autopsy law. - Tuesday, November 09, 2010When Don and Sarah Sinclair's 18-month-old son, Tyler, died suddenly while napping at a baby sitter's house, the medical examiner's investigator would not let the couple see their son.
A doctor and nurse at Southern Hills Medical Center, where the boy was taken in 2008, testified in Davidson County Circuit Court that they had tried to reason with the investigator, Sherrie Saint, but she threatened to have them arrested for interfering with her work.
A jury awarded the Nashville couple $300,000 in compensatory damages and $1.25 million in punitive damages against Forensic Medical Management Services PLC. The company contracts with Metro government to handle its 1,600 or so autopsies each year.
The six-man, six-woman jury attached a note to the verdict indicating the reason for the punitive damages: to "ensure that this injustice does not happen again."
Now, four of the 12 jurors; the Sinclairs; and their legal team, Charles Robert Bone, John Branham and David Briley, plan to lobby lawmakers in January to pass "Tyler's Law," which would give parents of a deceased child the right to see the body before it is taken for autopsy. No such law exists in Tennessee, although court testimony revealed that some states have such a mandate.
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 | Alexander's Run has overwhelming success with inaugural run in Trenton - Monday, November 08, 2010Researchers are working to identify the cause(s) and risk(s) of SUDC. But until a day when no family experiences this tragic loss, the SUDC program will continue to raise funds for research, aid in the creation of state and national legislation to further SUDC investigations, and provide programs and services for SUDC families across the country.
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| Running for a Reason –– Alex –– at Newbridge Park - Friday, October 29, 2010
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By David Weingrad-The fourth annual Alex’s Run For a Reason fundraiser took place this past Saturday at Newbridge Road Park in Bellmore to great success. About 500 people turned out to take part in the day’s activities, and the event raised more than $26,000.
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| Loudon County beats Park View, 19-7, in Touchdowns For Tommy Charity Football Alumni Game - Thursday, October 28, 2010
After a month of postponements due to weather, the second annual Touchdowns for Tommy charity football alumni game was held last week with Loudoun County defeating Park View, 19-7, to avenge a 21-19 last-minute loss in the 2009 contest. |
 | Newton firefighter, family host fundraiser for research after son’s unexplained death. - Wednesday, September 15, 2010
It will be a night to celebrate the life of Ryan Mancini.
But at the same time, Amy, Ryan’s mother, wants to raise awareness about Sudden Unexplained Death in Childhood — the mysterious condition that took her 20-month-old son away from her.
On Saturday, Sept. 18, Amy, her family and a host of supporters will hold a fundraiser at the Newton Marriott, “Remembering Ryan,” from 6 p.m.-midnight, to highlight the life of Ryan.
read more ... |
 | Families Urge Congress to Pass the Stillbirth and SUID Prevention, Education and Awareness Act - Tuesday, June 08, 2010On May 18th, over 30 family members and over 15 supporting organizations showed their support of the Stillbirth and SUID Prevention, Education and Awareness Act by travelling to Washington and participating in a Congressional Educational Breakfast and attending over 40 Congressional visits to urge their Congressman and Senators to sign on as co-sponsors of this crucial legislation.
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| Congress urged to pass the Stillbirth and SUID Education and Awareness Act - Wednesday, May 19, 2010"We're not using what our lost babies can teach us to help avoid this happening to someone else,'' Laura Crandall, whose daughter, Maria, died in her crib of unexplained causes at 15 months of age, told a forum held for congressional staff Tuesday.
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| SUDC Program Director Laura Crandall on the Imus Radiothon - Friday, May 07, 2010View Laura Crandall's segment on the Imus Radiothon. read more ... |
 | SUDC Program Director to appear on Imus Radiothon on Friday May 7th - Thursday, May 06, 2010Program Director Laura Crandall is scheduled to appear on the Imus Radiothon on Friday, May 7th between 8:00-9:00 a.m. (EST).
The IMUS Radiothon to benefit the Imus Ranch for Kids with Cancer, the Tomorrows Children's Fund, and the CJ Foundation for SIDS on 77 WABC Radio began LIVE this morning, May 6th at 5:30 a.m. and wraps up on Friday, May 7 at 10 a.m. The Radiothon can also be seen on Fox Business Channel from 6 to 9 a.m. and also live on the internet at http://live.foxbusiness.com/fblive.
The Radiothon is now in its 21st year. Please tune in!
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| NBC Nightly News Spotlight-Low serotonin levels linked to SIDS - Wednesday, February 03, 2010 |
| Low Seretonin Production A Likely Cause For SIDS - Tuesday, February 02, 2010FOR IMMEDIATE RELEASE
February 2, 2010 Hackensack, New Jersey –
Statement of the SUDC Program concerning the article published in the Feb. 3 issue of The Journal of the American Medical Association entitled: “Brainstem Serotonergic Deficiency in Sudden Infant Death Syndrome” by Kinney et al.
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| New SUDC Research Published - Tuesday, October 20, 2009The medical journal, Pediatric Development and Pathology has published an article entitled Sudden Death, Febrile Seizures, and Hippocampal and Temporal Lobe Maldevelopment in Toddlers: A New Entity.
In addition, The SUDC Program's Medical/Investigational Advisory board also released a statement to provide further education.
read more ... |
| Gene Tests Rate Sudden Cardiac Death Risk - Wednesday, September 30, 2009(CBS) New genetic studies are being made available to doctors and patients every day.
To kick off [the] "Early Show" series, "What's in Your Genes?" CBS News medical correspondent Dr. Jennifer Ashton took a look at some of the genetic advances being made -- and the medical battles that are being won... read more ... |
| Couple use running to cope with grief - Monday, September 28, 2009The 34th annual YMCA Johnstown Marathon will take place on Oct. 4 despite financial setbacks. The race was almost canceled this year due to a loss of funding from major sponsors. The YMCA was in the process of finding sponsors for the event when it was contacted by David Orosz, a Johnstown native, to see if there was anything he could do to help the marathon take place this year. Orosz and his wife, Ginny, used marathon running as an outlet for their grief after their 15-month-old daughter, Jordann, died of SUDC in 2002.
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| Channeling sorrow. Loss of daughter spurs parents to action. - Friday, August 14, 2009SUDC parents Robert and Dianne Lowe share the heartbreaking story of the loss of their precious daughter Chelsea Rose and how they have responded to the "call to action" to support The Stillbirth and SUID Prevention, Education, and Awareness Act! read more ... |
| Program will help probe unexplained infant deaths - Friday, August 14, 2009Through the Sudden Unexpected Infant Death (SUID) Case Registry pilot project, the CDC will compile comprehensive data on infant deaths in New Jersey and four other states, including autopsy results, medical records and information from death scene investigations that can highlight environmental factors that may have played a role. read more ... |
| Twin Cities Live features SUDC - Thursday, August 06, 2009Sheila and Mike Trymucha are featured on Twin Cities Live in a moving segment including an interview with Dr. Henry Krous. *Note you will need to scroll down to the 4th video and then click to play. read more ... |
| US Legislation Introduced Benefits SUDC! - Tuesday, July 14, 2009WASHINGTON, DC - Senator Frank R. Lautenberg (D-NJ) and Congressman Frank Pallone, Jr. (D-NJ-6) today introduced a bill to help reduce the number of unexpected infant deaths in America by calling for new research and education on stillbirths and Sudden Unexpected Infant Death (SUID). read more ... |
| Doc's Promise Fulfilled-CBS News Early Show - Friday, June 05, 2009 |
| KAAL TV - Monday, August 04, 2008Coon Rapids couple look for answers in child's death ~ Seven months ago, Sheila and Mike Trymucha lost their 16-month-old daughter, Lauren to Sudden Unexplained
Death in Childhood, or SUDC. read more ... |
| Good Day NY Morning Show - Friday, February 08, 2008Laura Crandall featured on NY morning show after she won Glamour of Your Year 2008 award. Watch video and read more ... |
| Glamour Magazine - Friday, February 01, 2008Laura Crandall of SUDC Wins Glamour's 2007 Woman of Your Year Award! read more ... |
| American Academy of Pediatrics - Monday, January 01, 2007"No easy answers. Program provides support to families touched by Sudden Unexplained Death in Childhood" read more ... |
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