OUR VISION

A world without Sudden Unexplained Death in Childhood (SUDC). 

OUR MISSION

Promote awareness, advocate for research, and support those affected by sudden unexpected or unexplained death in childhood.

OUR VALUE

We are the only organization worldwide whose purpose is to promote awareness, advocate for research, and support those affected by SUDC. SUDC is the fifth leading category of death in children ages one to four, yet SUDC receives no public funding. The SUDC Foundation provides all services at no cost to families.  

OUR STRATEGY

In May 2017, the SUDC Foundation initiated a five-year strategic planning process. After months of stakeholder interviews and data analysis, the members of the Board of Directors and staff of the SUDC Foundation met in September 2017 to clarify the Foundation’s vision, mission and value proposition, develop the organization’s priority objectives over the next five years and develop a strategy to accomplish them. Representatives from Sterling Foundation Management, the Foundation’s strategic management partner, led the retreat. Click below to see an overview of decisions made. 

  • HISTORY: In 1999, a small group of parents affected by unexplained toddler death attended a presentation at the SIDS Alliance national convention in Atlanta, GA. The presentation by Dr Henry Krous was entitled "Post-Infancy SIDS-Is it on the rise?" Following the presentation, Dr. Krous agreed to review the children's records, of the families in attendance to learn more about them. Over the following two years, more families who had experienced an unexplained childhood death were identified and Dr Henry Krous and Laura Crandall cofounded the San Diego SUDC Research Project which studied cases of SUDC from 2001- 2012. 

Laura Crandall, a Neurological Physical Therapist by training, and Chelsea Hilbert, an ER Social Worker by training, brainstormed together to create the mission of The Sudden Unexplained Death In Childhood Program. A proposal was submitted to the national non-profit, the CJ Foundation for SIDS, to support this new program and it was created in the fall of 2001. The SUDC Program was created to be a centralized resource for Sudden Unexplained Death In Childhood providing information, support, advocacy and research. 

With each year, the program grew to provide more services to more families with greater needs. In 2014, Laura Crandall and Lorri Caffrey, both SUDC parents, along with Dr Orrin Devinsky and Jim Lintott founded the SUDC Foundation as an independent non-profit health organization. The SUDC Foundation was created to continue the mission of the Program, as well as meet the current needs of those touched by Sudden Unexplained Death in Childhood. 

Stakeholder Survey