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SUDC Insights

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SUDC Insights is the official blog of the SUDC Foundation which shares and discusses issues important to the understanding and the ultimate prevention of SUDC. If you have questions or issues you would like to see addressed in SUDC Insights, please let us know at sudcinsights@sudc.org.

Scientific Advisory Board Spotlight: Dr. Thomas Keens

In this edition of SUDC Insights, we would like to introduce you to one member of our Scientific Advisory Board, Dr. Thomas Keens. Dr. Keens is a pediatric pulmonologist, Professor of Pediatrics, Physiology and Neuroscience at Keck School of Medicine at the University of Southern California and serves as the Chair of the California SIDS (Sudden Infant Death Syndrome) Advisory Council.

Staff Spotlight: Amanda Brindle

In this edition of SUDC Insights, we would like to introduce you to one member of our amazing staff, Amanda Brindle, the SUDC Foundation’s Family Services Coordinator. She is based out of the Foundation’s office in New Jersey. 

We are thankful for Amanda’s experience to support the needs of our families all the time, but especially in these uncertain times. Through Amanda’s expertise and leadership, the SUDC Foundation has been able to offer comprehensive and tailored support including virtual social hours, book clubs and tips for coping with the current global pandemic.

Monitors and SUDC Siblings: A 2020 Update

When a child dies suddenly and unexpectedly, parents will understandably experience fear that their surviving children and subsequent children may also die. Given that the majority of SUDC children reportedly die during an apparent sleep period, sleep can be a fearful time for parents. Parents often report the fear of walking into a quiet room or relay waking their sleeping child multiple times a night to ensure that they are breathing. Even for families who have not experienced the loss of an infant or child, these are commonly expressed fears.

Why SUDC Awareness is Important to Us

As we all continue to cope with the worldwide pandemic, we are encouraged by the dedication our supporters have continued to devote to SUDC Awareness Month 2020 while facing the challenges and uncertainty that surround us. We are so grateful to everyone who has helped us hold tight together as a community and found creative ways to take part in activities to raise awareness of SUDC and remember the children gone far too soon. 


The theme for the last week of the month is “Why SUDC Awareness is Important to Me,” which offers our community an opportunity to recall their efforts for the month and reflect on how raising awareness impacts their lives.


The SUDC Foundation represents a community with many stories, but one shared voice. The story of each child, the experience of each family and the voice of every SUDC supporter hold the key to creating a world free of SUDC. With that in mind, we asked each member of our staff and board of directors to share with us why SUDC awareness is important to them. 
 

How to Help Someone Through Grief

Losing a child is everyone’s worst nightmare. It’s not the way things are supposed to happen; so how do you support someone you love through something you’re uncomfortable even thinking about? Should you talk about their child? Should you offer advice? While there’s no one path or right answer, there are some important things I’ve learned from working with grieving parents as well as research and reading on the topic. It’s normal to fear making mistakes when helping those who are hurting, but it’s much worse to make the mistake of not trying to help at all. Here are some tips on helping a grieving parent through the experience of loss that I’ve learned along my journey of helping.   

Our accomplishments in 2019 were possible because of you.

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Thank you so much for your support in 2019.Through the generosity of our supporters, the SUDC Foundation continued to advance our mission of promoting awareness, advocating for research, and supporting those affected by sudden unexpected or unexplained death in childhood. I would love to share some of this year’s highlights with you. 

1,000

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It’s a number I never thought possible. When my daughter Maria died during a nap, I was told the tragedy of her death was unique. After all, toddlers don’t just die without a reason found, right? Babies do. Young infants do. I was well versed in the tragic statistics of sudden infant death and the risk reduction measures advocated by the American Academy of Pediatrics. But walking, talking, high-energy and exuberantly happy toddlers? No, they don’t just die inexplicably.

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