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SUDC Insights

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SUDC Insights is the official blog of the SUDC Foundation which shares and discusses issues important to the understanding and the ultimate prevention of SUDC. If you have questions or issues you would like to see addressed in SUDC Insights, please let us know at sudcinsights@sudc.org.

Insight from the 2019 Annual Meeting of the National Association of Medical Examiners

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For over 15 years, the SUDC Foundation hasn’t missed the opportunity to attend the National Association of Medical Examiner’s (NAME) meeting. In order to achieve our mission to support those who have suffered the sudden, unexpected death of a child, we first need to connect with them. Medical examiners play a critical role by referring them to us. While pediatric and other medical professionals may be in contact with these bereaved families after the death of their child, medical examiners and coroners most definitely will be. Equally important, we rely on medical examiners and coroners to complete comprehensive investigations and gather crucial data to identify the most accurate causes of death for these children.

What is Complicated Grief?

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Grief is a natural part of life. The often painful and difficult grieving process can be overcome by individuals experiencing it using personalized methods, on their own time, and with minimum complications. There are individuals that can also experience what is referred to as a comorbidity with their grief, such as Major Depressive Disorder (MDD) or Post Traumatic Stress Disorder (PTSD).

Spotlight on SUDC: Nathan's Story

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Nathan's story is lovingly told by his family.

Nathan came into this world of his own choosing. We had set his induction date for February 9, 2013, (so he could share his birthday with a grandfather he would never meet). However, Nathan decided his own birthday and came into the world at 1:03 am, February 10, 2013 (just missing the date we wanted by 1 hour and 3 mins) and weighing 5lb 12oz. After his birth, we were so happy. Our family was complete. My husband and I had our little girl (who was almost 3) and our baby boy--we didn't need anything else.

Fundraiser Host Spotlight- Meet Grandparent Jean Sibley

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We are thankful for our many families, friends and supporters who want to raise awareness and funds in memory of a beloved child by hosting a fundraiser to benefit the SUDC Foundation. In this edition of SUDC Insights, we would like to share our recent conversation we had with Jean Sibley, a SUDC grandparent who hosts Reading for Magnolia, an annual event held in memory of her granddaughter, Magnolia. 

The SUDC Foundation and the SUDCRRC

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At the SUDC Foundation, we often address questions, from the families we serve in particular, on the relationship between the SUDC Foundation and the SUDC Registry and Research Collaborative (SUDCRRC). While the two entities frequently partner together to foster high-quality research and to promote family bereavement support throughout research participation and beyond, they are each their own independent entities.

Posttraumatic stress disorder: Perspectives from an SUDC mama and psychologist

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Almost exactly two years ago my life literally changed overnight when I discovered my beautiful, healthy, thriving two-year-old son, Jackson, unresponsive in his crib just days after his second birthday. Although my role in this excruciating loss has been as a mother first and psychologist second, I experienced the déjà vu of learning first-hand how to facilitate my own recovery. As a clinical psychologist specializing in the treatment of posttraumatic stress disorder (PTSD), I learned to apply what I know, in my heart and in my brain, to surviving my own personal tragedy. Most importantly, when I initially found myself experiencing “PTSD-like” symptoms, such as intrusive memories from “that morning” and strong urges to avoid painful reminders of Jackson’s life and death, I reminded myself of a powerful fact: most people who experience trauma do not go on to develop PTSD.

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