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SUDC Insights

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SUDC Insights is the official blog of the SUDC Foundation which shares and discusses issues important to the understanding and the ultimate prevention of SUDC. If you have questions or issues you would like to see addressed in SUDC Insights, please let us know at sudcinsights@sudc.org.

Spotlight on SUDC: Nathan's Story

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Nathan's story is lovingly told by his family.

Nathan came into this world of his own choosing. We had set his induction date for February 9, 2013, (so he could share his birthday with a grandfather he would never meet). However, Nathan decided his own birthday and came into the world at 1:03 am, February 10, 2013 (just missing the date we wanted by 1 hour and 3 mins) and weighing 5lb 12oz. After his birth, we were so happy. Our family was complete. My husband and I had our little girl (who was almost 3) and our baby boy--we didn't need anything else.

Fundraiser Host Spotlight- Meet Grandparent Jean Sibley

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We are thankful for our many families, friends and supporters who want to raise awareness and funds in memory of a beloved child by hosting a fundraiser to benefit the SUDC Foundation. In this edition of SUDC Insights, we would like to share our recent conversation we had with Jean Sibley, a SUDC grandparent who hosts Reading for Magnolia, an annual event held in memory of her granddaughter, Magnolia. 

The SUDC Foundation and the SUDCRRC

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At the SUDC Foundation, we often address questions, from the families we serve in particular, on the relationship between the SUDC Foundation and the SUDC Registry and Research Collaborative (SUDCRRC). While the two entities frequently partner together to foster high-quality research and to promote family bereavement support throughout research participation and beyond, they are each their own independent entities.

Posttraumatic stress disorder: Perspectives from an SUDC mama and psychologist

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Almost exactly two years ago my life literally changed overnight when I discovered my beautiful, healthy, thriving two-year-old son, Jackson, unresponsive in his crib just days after his second birthday. Although my role in this excruciating loss has been as a mother first and psychologist second, I experienced the déjà vu of learning first-hand how to facilitate my own recovery. As a clinical psychologist specializing in the treatment of posttraumatic stress disorder (PTSD), I learned to apply what I know, in my heart and in my brain, to surviving my own personal tragedy. Most importantly, when I initially found myself experiencing “PTSD-like” symptoms, such as intrusive memories from “that morning” and strong urges to avoid painful reminders of Jackson’s life and death, I reminded myself of a powerful fact: most people who experience trauma do not go on to develop PTSD.

Learning to Walk in My Grief

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Tayjon came into our life and stole all our hearts, especially that of his brother Tyler. I never knew one could love a child as much as I do Tayjon. He was in so many ways an angel on Earth. Tayjon had the biggest smile and eyes that were so full of life. For the first six months of his life, he was a very quiet child, but then he became mobile and it was all over. Tayjon loved to climb on any and everything, it was nothing to often find him sitting on top of the dining room table looking out the window. By the time he turned one he had advanced from looking out the window, to running outside and playing. Jonjon loved to play outside. I’m not sure which he loved more playing in water or playing outside in water. Our last summer with him we spent so much time outside, just enjoying life, and watching the children play.

Pursuing Adoption After the Loss of a Child

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Eden Briscoe is a mother, a blogger, and an SUDC parent. Eden recently posted about her family’s journey with adoption on her blog “Indefinitely Three: An Imperfect Journey into Parenting, Loss, and Life.” To learn more about the Briscoe family and to support the memory of their son Christopher, visit https://sudc.org/christopherscrusaders/

Life is unpredictable in so many ways. Just when we think we have things figured out, life has a not-so-funny way of changing things up. There was a time when I really thought I had Life figured out. I was sick. There was a solution. I chose to voluntarily give up my option to have more children. It was, after all, the best option to remedy my chronic health problem. I agreed to my hysterectomy without a care in the world because we had three healthy boys. See? I had Life figured out. 30 days after that surgery, to the day, Christopher died. Without warning.

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