Medical Care After SUDC
Medical Information for Family Members & Their Physicians to Review
- Caring for the SUDC Family: Medical and Bereavement Information for the Clinician's Consideration
- Understanding Home Monitoring Options & Safe Sleep Practices for Infants and Young Children
- Febrile Seizures: Guidelines for the Neurodiagnostic Evaluation of the Child with a Simple Febrile Seizure (from the American Academy of Pediatrics). Note that this is for the general population and not specific to families with a history of febrile seizures or a history of sudden death.
- Home Monitoring for SUDC Siblings
- Caring for the SUDC Sibling with Febrile Seizures (FS)
- SUDC Facts
- Vaccine Safety and Your Child
"'Will this happen again? If no one can tell me why my child died, how can anyone be sure it won't happen again? How can I be proactive to protect my family...and have some peace of mind?' Families who are coping with a sudden unexplained death of a family member often have anxiety about their family health and the risk of reocurrence."
Cardiogenetic Clinics for Families
Some specially trained clinics exist to screen and evaluate families with a history of sudden unexplained death.
- Arizona, Minnesota, Florida: The Long QT Syndrome Clinic of the Mayo Clinic
- Bronx, NY: The Children's Hospital at Montefiore Center for CardioGenetics
- Boston, MA: Cardiac Arrhythmia Service at Children's Hospital of Boston
- Stanford, CA: Stanford Center for Inherited Cardiovascular Disease
Additionally, the Pediatric and Congenital Electrophysiology Society (PACES) is also a good resource to locate specialists who can assist those in screening family members of sudden death.
